The Canadian Hemophilia Society, BC Chapter

Infromation about our charity

 The Canadian Bluemoon ELVIS® Festival 

What is Hemophilia?   Hemophilia is an inherited disease that prevents the blood from clotting properly. People with hemophilia have a deficiency of a blood protein, also called a "clotting Factor," that is necessary to clot the blood and stop bleeding. A person does not bleed more profusely or more quickly than other people; however, he bleeds for a longer time. External wounds are usually not serious. Far more important is internal bleeding (hemorrhaging).  These hemorrhages are in joints, especially knees, ankles and elbows; and into tissues and muscles. When bleeding occurs in a vital organ, especially the brain, a hemophiliac's life is in danger.  The severity of hemophilia can vary depending on the amount of coagulation Factor in the blood of a person with hemophilia. People with hemophilia can have mild, moderate or severe forms of the bleeding disorder.  People with mild hemophilia have 5 to 30% of the normal amount of clotting Factor. They usually experience bleeding only after surgery or severe injury. People with moderate hemophilia have 1 to 5% of the normal amount of clotting Factor. These persons might bleed for a long time after surgery, a bad injury or dental work. People with severe hemophilia have less than 1% of the normal amount of clotting Factor. These people tend to bleed more often several times a month and sometimes for no clear reason. Bleeding may occur into muscles and joints. Hemophilia affects people of all races, colours, and ethnic origins. The most severe forms of hemophilia affect almost only males. Females can be seriously affected only if the father is a hemophiliac and the mother is a carrier. This is extremely rare.

Hemophilia A is the most common form of hemophilia, and accounts for about 80% of all cases of hemophilia. People with hemophilia A, also called "classic hemophilia," have a deficiency in clotting Factor VIII. The clotting Factor is either missing or there is not enough of it. Hemophilia A happens in every race and population in the world. Hemophilia A is found almost only in males, and happens in about 1 out of every 10,000 people. People with hemophilia B have a deficiency in coagulation Factor IX.       Hemophilia B is also called Christmas disease, named for the first person diagnosed with a Factor IX deficiency. It is the second most common form of hemophilia, and happens in about 1 out of every 50,000 people. Like hemophilia A, hemophilia B is found almost only in males.

Hemophilia in Canada - Both hemophilia A and B are very rare disorders. Hemophilia A (Factor VIII) affects fewer than 1 in 10,000 people, or about 2,500 Canadians. Hemophilia B (Factor IV) is even less common, affecting about 1 in 50,000 people, or about 600 Canadians.

B.C.Wounded Warriors / First Responders Foundation

              Recently formed BC Foundation to benefit all veterans and first responders in our Province

We are a band of brothers and sisters who have joined together
with one common goal:

To show and express our heartfelt appreciation to our veterans, reservists, active duty military, and first responders who are challenged by physical and/or mental wounds sustained by active participation in recent or past  military conflicts and duties.

Our focus is on all  ‘wounded warriors’, military, RCMP, fire fighters, and first responders especially those who are dealing with the effects of post traumatic stress disorder.
Post traumatic stress can be debilitating, and can lead to depression and suicide.

There were a reported 178 Canadian soldier suicides between 2002 and 2014 — 20 more than the number of armed forces members killed in action. While the rate is in line with the general population, it’s believed the common link in many of those deaths is post traumatic stress disorder.

Common complaints included excessive fears and anxiety, memories that won’t go away, cold sweats and anger. Even a car backfiring in a peaceful suburban neighbourhood can trigger flashbacks. And enough of these triggers can force the country’s strongest and bravest people to barricade themselves off from the world, their friends, and even their own spouses and children.

But the tide may be turning, as post traumatic stress, depression and suicide are becoming better studied and less stigmatized.

Talking about it really can help.